Hair Loss - Care Matters #youtubeshorts #alopecia #hairloss

Some know. Some don’t. To recap I’ve had female pattern baldness for 24 years, diagnosed in 2000. Last year I was diagnosed with a non scarring inflammatory alopecia and told if treatment was not done it could turn scarring at some point, maybe. I began steroid injections immediately last Nov. I went to this dermatologist for a Biopsy, and was told she was certain of her dermoscopy and clinical findings and a biopsy was not needed. During the last 6 months I’ve lived mentally adjusting to my 2nd hair loss diagnosis, and how I will live with this new one, what that entails, how I’ll adjust and mentally process. It hasn’t been easy.
Each time I have gone there I have asked “Is it scarring?” And was definitively told it was not. This last time I was told that she was not comfortable stating that it’s not scarring and the only way to know for certain was a biopsy, and we could do that in 6 weeks since I seemed to be so concerned it’s scarring. Who wouldn’t be concerned? That’s a completely different diagnosis. Yes it’s hair loss, but for me to process this, I would like to know what I’m dealing with, it matters to me. This biopsy should have been done in Nov.

In my last appt, she told me my hair looked good, and that even the other male doctor that walked in said so. It looks terrible, it does not look good. I said what male doctor? No one came in at all. She’s said, “Oh, must have been someone else.”

I was told to not wear my wigs, and just “go out like that” meaning my bio hair, and not wear my beanies. These are unreal statements really.

Am I even remembered? My hair loss history. The road I have traveled with hair loss has been long, it was really difficult for many years till I found my way, and I hate that I found myself in a dermatologist office again for hair loss, I really do. I hate it because it puts me in a vulnerable position, but not much choice if I want to figure out what’s going on right now. The whole thing is messed up. Not everyone may need to know their type of loss, I would like to. It mattered in 2000, it matters now.

Dear medical community, I am a human being, not a number. Thank you for your consideration.

XOXO